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Success Happens at the HLH Center of Excellence at Cincinnati Children’s

baby with mom and doctorAre you looking for a proven program that will be able to not only diagnose, but properly treat and possibly cure an HLH or hemophagocytic lymphohistiocytosis diagnosis? If so, the HLH Center of Excellence at Cincinnati Children’s Hospital can help your family.  At Cincinnati Children’s you will find a team of world-renowned HLH experts who have devoted their professional careers to the topic of HLH.  This team of doctors, scientists, researchers, and support staff will welcome your family and do everything it takes to successfully send your child home healthy.  That is their mission and they take this mission very seriously.

Countless families have entered the HLH Center of Excellence with great uncertainty.  The overwhelming thought of your child being so sick is almost unimaginable.  Yet, the experts at Cincinnati Children’s take these families in and help them overcome the impossible.  Here are just a few stories of success from these families.

The day before Miabelle was to celebrate her first birthday, her family was given the news that she was battling the rare immune disorder HLH.  For the next 18 months, Miabelle’s family would live in Cincinnati so that she could receive care from Cincinnati Children’s.  Miabelle’s cure would came from a successful bone marrow transplant.  She is now healthy and happy living out her childhood in her New Jersey home.

At the age of 3, William was admitted to Cincinnati Children’s Hospital in very dire condition. His liver was failing and within weeks of his hospitalization he had to undergo numerous blood transfusions in order to stay alive.  Testing would soon reveal that William had fallen victim to HLH and would need aggressive treatment.  Thanks to the fact that William’s brother, Charles, was a perfect bone marrow match, he was able to get the treatment he so badly needed. Charles experienced a flawless bone marrow harvest procedure and William quickly recovered from his transplant.  In fact, William went home only two weeks later and is now considered cured.

After a bad case of the flu, Sean just couldn’t fully recover.  He spent nearly a month in the hospital and that’s when the diagnosis was made.  Sean was 18 years old when he got the news that he was suffering from HLH.  After a successful bone marrow transplant, Sean is now a very normal young adult.  He has a passion for spreading HLH awareness and the importance of bone marrow donation.

To find out more about the HLH Center of Excellence located at Cincinnati Children’s Hospital, feel free to visit their website.  There you will be connected with information designed to assist your primary physician, research project details, family support topics, and much more!  This wealth of information has been created to assist families struggling with HLH and it is highly recommended that you start your research process there.

Here at the Matthew and Andrew Foundation, our volunteers work tirelessly to connect families dealing with HLH to the resources found at Cincinnati Children’s HLH Center of Excellence.  The hope behind this part of our mission is to get HLH patients the specialized care needed to result in their full recovery.  Our foundation’s mission also focuses on giving back to the many organizations that assist families during childhood illness.  Some of these organizations include the Be The Match Registry and Ronald McDonald House Charities.  Your constant support is vital to our mission and appreciated in so many ways. Please consider supporting our goals with a donation.

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