Today I’m riding my bicycle the 86 miles to Clinton, OK for a beautiful little girl named Miabelle who was diagnosed with HLH this past February. Her story is like so many others. It took a month and a half and three hospitals before she was diagnosed correctly. Her family is now anxiously awaiting the results of the Be The Match Registry search for a possible bone marrow donor. Unfortunately, I know exactly what this family is going through right now. There are so many questions to get answered. How and why did this happen to us? What exactly is HLH? What is ahead of us? That is why it is so important to treat today as if there is no tomorrow. None of us know when our lives are going to instantly change forever. To learn more about Miabelle and her story you can visit www.miabellegillier.blogspot.com/. My initial goal was to do a video post every morning and night but I’ve quickly realized that finding Wifi in these small towns to upload videos is not going to be easy. Thank you for your support and for checking in.
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