11503 St. Charles Rock Rd. • Bridgeton • MO • 63044
636-541-2766
IRS 501(c) 3 Tax ID # 27-3427104

Day 2 – 86 miles to Clinton, OK

Today I’m riding my bicycle the 86 miles to Clinton, OK for a beautiful little girl named Miabelle who was diagnosed with HLH this past February. Her story is like so many others. It took a month and a half and three hospitals before she was diagnosed correctly. Her family is now anxiously awaiting the results of the Be The Match Registry search for a possible bone marrow donor. Unfortunately, I know exactly what this family is going through right now. There are so many questions to get answered. How and why did this happen to us? What exactly is HLH? What is ahead of us? That is why it is so important to treat today as if there is no tomorrow. None of us know when our lives are going to instantly change forever. To learn more about Miabelle and her story you can visit www.miabellegillier.blogspot.com/. My initial goal was to do a video post every morning and night but I’ve quickly realized that finding Wifi in these small towns to upload videos is not going to be easy. Thank you for your support and for checking in.

9 Comments

  1. Paige Whited's Gravatar Paige Whited
    May 23, 2011    

    Justin, Thankyou for sharing your inspiring journey.

  2. Mark Burns's Gravatar Mark Burns
    May 23, 2011    

    Justin:

    Thinking about you and the boys on my 100mile drive to Cape Girardeau this morning. What took me 1 1/2hrs to drive and was easy, will take you the good part of a day. Good luck and Godspeed!

    Mark Burns

  3. Matt Meyer's Gravatar Matt Meyer
    May 23, 2011    

    Justin:

    You are doing awesome work. Keep up the effort. We are cheering for you in Cincinnati.

  4. May 23, 2011    

    Be safe Justin…the weather is doing some crazy stuff in MO where they have had tornadoes!
    I am watching the money thermometer go up and up.Thank you for the story of Miabelle so we can be praying for the family.

  5. Sharon Danners's Gravatar Sharon Danners
    May 23, 2011    

    Continued prayers for your journey Justin…be safe out there,, and once again,,, Thank you!!!

  6. Dallas's Gravatar Dallas
    May 23, 2011    

    What a journey, Justin! We are all cheering you on! Stay safe… xxoo

  7. becky alfred's Gravatar becky alfred
    May 23, 2011    

    Prayers for a safe ride all the way to Chicago. What an amazing father you are to your boys and an inspiration to us all!

  8. Jo Ann Spadaro's Gravatar Jo Ann Spadaro
    May 23, 2011    

    thanks again for all you are doing and we pray now for Miabelle.

  9. Candace King's Gravatar Candace King
    May 23, 2011    

    I am praying for your journey and bringing to light all of stories you collect along the way. Please don’t take risks with the tornadoes around. This is from a native Kansan.

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