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Cincinnati Children’s Is Supporting Families Facing HLH

Parent Holds The Hand Of A Small ChildIt isn’t a secret that the HLH Center of Excellence at Cincinnati Children’s is making a difference in the lives of those facing an HLH diagnosis.  As host to one of the world’s leading HLH programs, Cincinnati Children’s understands the ins-and-outs of this disease unlike most hospitals.  Thanks to this team’s focused attention on HLH, families are finding the many resources they need to improve the outcome for the tiniest of patients.

HLH or Hemophagocytic lymphohistiocytosis is a rare condition that quickly becomes fatal. As this immune disorder begins to attack a patient’s organs, it is imperative that a proper diagnosis is made and that a treatment plan is put into place.  This swift action is the only way doctors can effectively give hope to those fighting this disorder.

Resources to Consider When Choosing Cincinnati Children’s Hospital

There are a number of reasons why the volunteers at the Matthew and Andrew Akin Foundation so highly-recommend the services provided by the HLH Center of Excellence at Cincinnati Children’s Hospital.  Not only does Cincinnati Children’s employ some of the world’s leading HLH doctors and scientists, but they additionally provide extraordinary family support in the form of many other services.  One things for sure, at Cincinnati Children’s you will always feel welcome!

Coming to a new city to receive specialized medical care is a stressful task and the team at Cincinnati Children’s wants to assist you in reducing that stress.  This is so important because all of your attention needs to be focused on your sick child and not the ins-and-outs of visiting an unfamiliar city.  In order to do this, Cincinnati Children’s partners with a number of local service providers so that arranging lodging and transportation is much easier.  Out-of-town families even have access to complimentary and discounted tickets to some of Cincinnati’s most popular attractions.  What a fun way to relax and just enjoy your child!

Before coming to Cincinnati Children’s, you will want to make sure and check out the Family Support page accessed via the HLH Center of Excellence home page at www.cincinnatichildrens.org.  The Family Support page is filled with uplifting HLH Success Stories that will help you understand the loving care you can expect from this team.  While browsing the hospital’s online resources, you will additionally find an abundance of information about the disease, an overview of what treatment looks like, and details on current research projects hosted by the hospital.

More on the Matthew and Andrew Akin Foundation

The volunteers at the Matthew and Andrew Akin Foundation want to encourage you to consider the HLH Center of Excellence at Cincinnati Children’s.  Through personal experience, these individuals understand what HLH patients are facing and strive to connect them with the best possible care.  For more information about Cincinnati Children’s, we invite you to click on the “Why Cincinnati Children’s” link provided above.  There you will be re-directed to the HLH Center of Excellence home page.

For more information regarding how you can help support those fighting HLH, make sure to visit www.matthewandandrew.org. This site has been designed to give HLH families the important information they need to be connected to the HLH specialists at Cincinnati Children’s.  By spreading the word, funding research, and focusing on education, the Matthew and Andrew Foundation is finding ways to HLH less scary and more treatable.

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